老年黄斑变性患者真实体验质性研究的Meta整合
| 作者: |
1卞薇,
1谭明琼,
1苏君,
1万君丽,
2田旭,
1李世迎
1 中国人民解放军陆军军医大学西南医院眼科，重庆 400038 2 重庆大学附属肿瘤医院，重庆市肿瘤研究所，重庆市肿瘤医院，重庆 400030 |
| 通讯: |
田旭
Email: yxtx880919@163.com |
| DOI: | 10.3978/j.issn.2095-6959.2018.03.023 |
| 基金: | 陆军军医大学人文社科基金(2017XRW21)；第三军医大学第一附属医院青年创新项目(SWH2015QN04)。 |
摘要
目的：系统评价老年黄斑变性患者(age-related macular degeneration，AMD)的真实体验。方法：计算机检索The Cochrane Library，JBI，PubMed，Web of Science，EMbase，PsycINFO，CMB，CNKI和万方数据库，搜集关于AMD患者患病后真实体验的质性研究，检索时限均从建库至2017年6月。采用“澳大利亚JBI循证卫生保健中心(2008)质性研究质量评价标准”对文献质量进行评价，采用Meta整合方法对结果进行归纳、诠释。结果：共纳入11篇文献，提炼出31个研究结果，6个类别和2个整合结果。整合结果1：“疾病给患者造成日常功能障碍，由此而引起一系列情绪体验、产生社会隔离和经济负担”；整合结果2：“患者生活重建和医疗服务需求”。结论：卫生保健人员需了解患者不同时期障碍和需求，给予对应的帮助和指导，从而加强患者角色适应和自我管理能力的培养，最终实现远期生存质量的提高。
关键词：
年龄相关性黄斑变性；真实体验；质性研究；Meta整合
Lived experience of patients with age-related macular degeneration: A Meta synthesis of qualitative studies
CorrespondingAuthor: TIAN Xu Email: yxtx880919@163.com
DOI: 10.3978/j.issn.2095-6959.2018.03.023
Foundation: This work was supported by the Army Medical University of Humanities and Social Science Project (2017XRW21) and Youth Innovation Project of the First Affiliated Hospital of Third Military Medical University, China (SWH2015QN04).
Abstract
Objective: To systematically review the experience of patients with age-related macular degeneration. Methods: We searched databases including The Cochrane Library, Joanna Briggs Institute Library, PubMed, EMbase, PsycINFO, CMB, CNKI and Wangfang from inception to June 2017, to collect qualitative studies about the experience of patients with age-related macular degeneration. The quality of included studies was assessed according to JBI Critical Appraisal Tool. Meta integration method is used to sum up and interpret the results. Results: A total of eleven literatures were included. Thirty-one results, six categories and two integration results were extracted. Integration results 1: The disease causes daily dysfunction, which leads to a series of emotional experiences, social isolation and financial burden; integration results 2: Patients’ life reconstruction and demand for medical service. Conclusion: Health care workers should understand the obstacles and needs of patients in different period, to give the help and guidance, to strengthen the role of the patients adapt to training and self-management, and improve their long-term quality of life.
Keywords：
age-related macular degeneration; lived experience; qualitative research; Meta synthesis