白血病患儿父母家庭韧性与疾病不确定感的相关性
| 作者: |
1莫晓娟,
2张艳艳
1 洛阳市中心医院肿瘤二科，河南 洛阳 471000 2 洛阳市中心医院血液内科，河南 洛阳 471000 |
| 通讯: |
莫晓娟
Email: momo11789@126.com |
| DOI: | 10.3978/j.issn.2095-6959.2018.11.031 |
摘要
目的：调查白血病患儿父母家庭韧性与疾病不确定感的情况，并探讨二者的相关性。方法：应用家庭坚韧性量表(Family Hardmess Index，FHI)和父母疾病不确定感量表(Parent’s Perception of Uncertainty Scale，PPUS)对132名白血病患儿父母进行调查。结果：白血病患儿父母的PPUS总得分为83.61±15.53，条目均分为2.99±0.61，专业不可预测性和复杂性是得分较高的2个维度；FHI得分为56.30±2.67，条目均分为2.82±0.57，挑战是得分最低的维度；FHI各维度的得分均与PPUS各维度的得分呈负相关(r=−0.451~−0.239，P<0.01)。结论：白血病患儿父母存在较高的疾病不确定感和相对较差的家庭韧性水平，且二者呈负相关。
关键词：
白血病；儿童；父母；家庭韧性；疾病不确定感
Correlation between parental resilience and uncertainty in illness in children with leukemia
CorrespondingAuthor: MO Xiaojuan Email: momo11789@126.com
DOI: 10.3978/j.issn.2095-6959.2018.11.031
Abstract
Objective: To investigate the family resilience and disease uncertainty in parents of children with leukemia, and to explore the correlation between the two factors. Methods: The Family Hardmess Index (FHI) and the Parent’s Perception of Uncertainty Scale (PPUS) were used to investigate the parents of 132 children with leukemia and analyze the correlation. Results: The total PPUS score of the parents of children with leukemia was 83.61±15.53, in each 2.99±0.61. The unpredictability and complexity of the major were 2 dimensions of higher scores; the score of FHI was 56.30±2.67, the entries were 2.82±0.57, and the challenges were the lowest dimensions; the scores of the FHI dimensions were scored. There was a negative correlation between the scores of all dimensions and PPUS (r= −0.451 to −0.239, P<0.01). Conclusion: Parents of children with leukemia have higher uncertainty in illness and family resilience, and the two are negatively correlated.
Keywords：
leukemia; children; parents; family resilience; uncertainty in illness