湿性老年黄斑变性患者治疗期的生活体验
| 作者: |
1万君丽,
1卞薇,
1谭明琼,
1苏君,
1刘洋
1 陆军军医大学(第三军医大学)西南医院眼科，重庆 400038 |
| 通讯: |
卞薇
Email: 664091353@qq.com |
| DOI: | 10.3978/j.issn.2095-6959.2018.09.023 |
| 基金: | 重庆市技术创新与应用示范 ( 社会民生类一般 ) 项目 (cstc2018jscx-msyb0129)；第三军医大学第一附属医院青年创新项目 (SWH2015QN04)。 |
摘要
目的：深入了解湿性老年黄斑变性(wet age-related macular degeneration，wAMD)患者治疗期生活体验，为建立针对患者治疗期的个性化连续性照护模式提供理论依据。方法：采用质性研究中的现象学研究方法，对2016年1至12月于陆军军医大学(第三军医大学)西南医院门诊就诊的21名wAMD患者进行半结构式访谈，采用NVivo 10.0统计软件，根据Colaizzi现象学分析7步法进行整理。结果：wAMD患者治疗期生活体验可归纳为无法控制的躯体症状、由消极到积极心态的转变和支持系统3个主题。结论：wAMD患者的治疗期生活体验充分反映现有健康管理模式的匮乏与不足，干预项目的设计和实施需充分考虑激发患者自我效能，满足个性化需求以及确保有效的医患沟通。
关键词：
湿性老年黄斑变性；生活体验；质性研究
Experience of people with wet age-related macular degeneration
CorrespondingAuthor: BIAN Wei Email: 664091353@qq.com
DOI: 10.3978/j.issn.2095-6959.2018.09.023
Foundation: This work was supported by the Chongqing Technology Innovation and Application Demonstration (Social and Livelihood General) Project (cstc2018jscx-msyb0129) and the First Affiliated Hospital of the Third Military Medical University Youth Innovation Project (SWH2015QN04), China.
Abstract
Objective: To understand the life experience of people with wet age-related macular degeneration and provide reference for continuous nursing care. Methods: Phenomenological research design and semi-structural interviews were conducted to 24 people with wet age-related macular degeneration. Results: Three themes were found including uncontrolled symptom, changing from negative to positive and support system. Conclusion: People with wet age-related macular degeneration are under inadequate disease management. Full consideration about self-efficiency, individual needs and effective medical communication are needed when design and implement intervention for wet age-related macular degeneration.
Keywords：
age-related macular degeneration; life experiences; qualitative study