文章摘要

湿性年龄相关性黄斑变性患者共同决策影响因素的质性研究

作者: 1万 君丽, 1卞 薇, 1刘 明琼, 1苏 君, 1谭 明琼, 1康 玲
1 陆军军医大学第一附属医院眼科,重庆 400038
通讯: 卞 薇 Email: 664091353@qq.com
DOI: 10.3978/j.issn.2095-6959.2020.02.026
基金: 重庆市技术创新与应用示范(社会民生类)项目(cstc2018jscx-msybX0129)。

摘要

目的:了解湿性年龄相关性黄斑变性(wet age-related macular degeneration,wAMD)患者共同决策的影响因素。方法:采用目的抽样法,选取23名wAMD患者进行半结构式访谈,应用Colaizzi现象学分析法进行资料分析。结果:提炼出wAMD患者共同决策影响因素的3个主题:患者参与共同决策的能力、共同决策交互因素、医疗系统因素。结论:根据wAMD患者共同决策的影响因素来充分了解疾病治疗过程中患者参与共同决策所面临的难题,为患者有效参与共同决策,并基于个人价值观、最佳循证医学证据和医生治疗经验等选择最适宜证据的治疗决策方案。
关键词: 湿性年龄相关性黄斑变性;共同决策影响因素;质性研究

Qualitative study on factors influencing co-decision in patients with wet age-related macular degeneration

Authors: 1WAN Junli, 1BIAN Wei, 1LIU Mingqiong, 1SU Jun, 1TAN Mingqiong, 1KANG Ling
1 Department of Ophthalmology, First Affiliated Hospital of the Army Medical University, Chongqing 400038, China

CorrespondingAuthor:BIAN Wei Email: 664091353@qq.com

Foundation: This work was supported by the Demonstration Project of Technology Innovation and Application (Social Livelihood) of Chongqing City, China (cstc2018jscx-msybX0129).

Abstract

Objective: To understand the influencing factors with wet age-related macular degeneration on doctor-patient shared decision-making. Methods: Phenomenological research design and semi-structural interview were conducted to 23 people with wet age-related macular degeneration. Results: Three themes were found including the ability of patients to participate in shared decision-making, mutual factors of common decision-making, and factors of medical system. Conclusion: According to the influencing factors of wAMD patients’ joint decision-making, we can fully understand the difficulties that patients face in participating in the joint decision-making in the process of disease treatment, so as to effectively participate in the joint decision-making for patients, and select the most appropriate evidence-based treatment decision-making plan based on personal values, the best evidence-based medical evidence and doctors’ treatment experience.
Keywords: wet age-related macular degeneration; factors on shared decision-making; qualitative study