目的：调查了解肠造口患儿心理韧性的现状，并探讨家庭亲密度对其心理韧性的影响。方法：采用肠造口患儿一般情况调查表、慢性病儿童韧性量表(chronic illness children’s resilience scale，CICRS)和家庭亲密度量表(family APGAR index，APGAR)对南阳市中心医院小儿外科住院的172名肠造口患儿进行问卷调查。结果：肠造口患儿的CICRS得分为83.74±12.68，其中146名(84.9%)的患儿得分处于中低水平；家庭亲密度得分为6.87±1.09，其中116名(67.4%)患儿具有良好的家庭功能，56名(32.6%)患儿具有中度障碍的家庭功能；单因素相关性分析结果显示：适应度、成熟度和情感度均与心理韧性得分呈正相关(P<0.05)；患儿年龄、家庭教育环境、人均收入和造口术后时间、合作度、成熟度和亲密度是心理韧性的影响因素(P<0.05)，共可解释方差变异量的19.3%。结论：肠造口患儿的心理韧性水平较低，临床护理人员应全面评估患儿的人口学特征，注意调动与患儿相关的家庭情感支持，以减少其在疾病治疗过程中的心理应激反应和提高生存质量。
Effect of family adaptability on psychological resilience in enterostomy children patients
Objectives: To research the current situation of psychological resilience of enterostomy children patients, and to discuss the influence of family adaptability on their psychological resilience. Methods: General enterostomy children patients’ situation questionnaire, chronic illness children’s resilience scale (CICRS) and family APGAR index (APGAR) were adopted targeting 172 enterostomy children patients hospitalized in a comprehensive hospital. Results: CICRS score of enterostomy children patients was 83.74±12.68; 146 children patients (84.9%) were in the lower and medium level. The family adaptability score was 6.87±1.09; 116 children patients (67.4) had good family function and 56 children patients (32.6%) had moderate impediment family function. As indicated by Pearson correlation analysis results, adaptability, maturity and emotion level were positively correlated to psychological resilience score (P<0.05). As indicated by hierarchical regression analysis results, age, family education environment, the per capita income, colostomy surgery time, adaptability, maturity and emotion level were independent influence factors of psychological resilience (P<0.05), they could explain 19.3% of variance variation amount together. Conclusion: The enterostomy children patients are of lower psychological resilience level. The clinic medical staff should assess the demographic characteristics of the children patients in an all-round way, mobilize the related family emotional support for the children patients, and thereby to reduce their psychological stress reaction in the process of disease treatment and improve their life quality.